Hope you're all well. I check in here now and then but haven't posted much lately. I've been in a serious funk lately and there's no end in sight. As many of you know, about ten months ago I was given some horrible news. I had a physical and some additional tests done and after those test results came in, my doctor told me that I had Lou Gherig's Disease. (ALS) This was TERRIFYING! After about three months thinking that I was dying, a specialist told me that it wasn't ALS which was great news. I do however have Late Onset Tay-Sachs disease. It is extremely rare and there is no cure and no treatment available. My doctor says that all I can do is physical therapy and hope that I can get some strength back in my legs. I've been having a very hard time going up and down stairs, even just getting up from a seated position is very difficult.
I've completed six weeks of physical therapy and the good news is that I am seeing some improvement with the symptoms. However, even with the improvements I've been feeling very tired and have a hard time doing even minimal tasks anymore. I've been a licensed builder for about 20 years and been enjoying it. I am a one man operation and don't have a crew. I do small jobs that I can handle myself which have included general repairs, light remodeling, flooring, decks, etc.
I'm thankful for the improvements that I've seen in only six weeks of PT, but I can also see the handwriting on the wall. I'm fairly sure at this point that I'm not going to be able to continue in the home improvement industry. My therapist is telling me that it's time that I start using a cane and we're hopeful that it doesn't progress to having to use a walker and the worst case, a wheelchair. Right now I'm thankful to still be breathing, but I've been through some MAJOR life changes the past few months and I'm in for more. Right now sleep is a rare treat and it makes the days even longer. I'm going to have to start to find something to replace my work in the trades and it's pretty scary. It's hard enough finding a job in this lousy economy let alone starting over at 48 years old!
I'll pop in now and then and see what's up. Hopefully I'll get something and be OK financially, physically, and mentally. This has been very tough on me and I'm still trying to wrap my head around the whole situation. When I get the time and motivation to create some things, I'll post them here to show you what I've been up to.
Take care.
John
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